Haley is our hero, our angel, our warrior, our inspiration. This beautiful child was so special,
caring and selfless. She created joy and lasting memories in the hearts of many. Haley was
diagnosed with Langerhan's Cell Histiocytosis (LCH) at the age of 9 months. She battled skin and
bone lesions for most of her life. Haley underwent many surgical procedures including extensive
surgery removing bone lesions from her skull and requiring bone grafts when she was 15 months
old. In her short life, Haley had more blood draws, medications, chemotherapy treatments, x-rays,
scans, sonograms, MRIs, biopsies and blood products than most of us can count.
Part of the beauty of Haley is that through all of this, she never really thought too much about
being different. She just really enjoyed life and shared so many belly busting laughs and face
cracking smiles! While Haley never really got better, she also never really got worse; until 2010.
Starting in mid January, Haley spent over 2 months in the hospital, the majority of the time in
intensive care. LCH had invaded Haley's lymph nodes and infection was ravaging her body. Haley
was not expected to make it. Through the power of prayer, Haley surprised the doctors and
made it. She was to have about six more months with us. Some of the time was spent out of the
hospital, but much was spent in her special room at Dell. Still Haley laughed & joked and smiled &
played. Haley kept us happy and we tried so hard to keep her healthy.
In July of 2010 we learned in addition to Langerhan's Cell Histiocytosis, Juvenile Xanthogranduloma
(JXG) had taken over most of Haley's bone marrow. Haley's chemotherapy was changed and
another bone marrow biopsy was taken in August. On Friday, August 13, 2010 we learned Haley's
bone marrow was not going to recover. She would never be able to make blood or platelets on
her own and she would have no chance of fighting off the infection she currently had. On
Sunday we moved from the hospital room to ICU, where family and friends kept Haley feeling
safe and her parents and their faith kept her unafraid. Haley died Wednesday morning, August 18,
2010. Heaven is lucky to have this sweet child. Haley was 3 years and 10 months old.
Haley is our inspiration. Haley did so much for us and now we now strive to do much for others
in her name.
Haley's journey is chronicled in detail on her CaringBridge Page.
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